Profound and multiple learning disabilities: setting standards of care.
Michael’s article explains how nurses have been instrumental in developing and disseminating national service standards for people with profound and multiple disabilities.
“A report in 2010 concluded that people with profound and multiple learning disabilities struggle to access the support and services they need and that their needs were not being met. Our work as a large provider of care to this group also showed that they often lacked presence and voice. We supported the development of service standards for organisation’s and individuals, and have worked to share this best practice nationally through a series of events. Our nurse-led team has also taken the lead on implementing these standards in our organisation through forums and have also worked to promote self-advocacy so those in their care can have an active voice.”
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